Influences on quality of life for people with HIV

NAPWHA has developed a framework for understanding quality of life for people living with HIV. Brent Allan mentions the Accord Framework in the video at the end of topic 1.1. This framework complements PozQOL.

The framework identifies four positive and negative drivers:

Positive drivers

  • Meaning: Where HIV fits in your life narrative and what meaning and purpose you can find in living with HIV.
  • Belonging: Feeling a sense of belonging and enough of the kinds of social connection that matter to the person living with HIV.
  • Care: Wholistic HIV care that goes beyond viral suppression and includes the full spectrum of issues and experiences that affect quality of life for people with HIV.
  • Support: Receiving support when times are tough from positive peers and organisations that provide social and support services.

Negative drivers

  • Isolation: A prolonged lack of belonging, social contact and connectedness.
  • Stigma: All the many and various ways in which people are devalued as people for having HIV.
  • Distress: Acute or chronic lack of psychological ease in everyday life.
  • Insecurity: Not having secure living arrangements and life circumstances. This includes poverty, insecure or insufficient income, precarious employment, food insecurity, being homeless or unsatisfactory housing.

We will revisit a number of these in Lesson 4 which looks at the psychosocial needs of older people living with HIV.


Video

David’s journey of living and ageing with HIV:
https://www.youtube.com/watch?v=WEE2FMpqDc8&t=115s


Reflection Question

What are some of the issues David reflects on in the video that might influence the quality of life of a person living with HIV who is ageing? Identify one (1) example for each of the following —

Positive drivers:
Meaning, Belonging, Care, Support

Negative drivers:
Isolation, Stigma, Distress, Insecurity.


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